2023
Ford, E., Milne, R. and Curlewis, K., 2023. Ethical issues when using digital biomarkers and artificial intelligence for the early detection of dementia Wiley Interdisciplinary Reviews: Data Mining and Knowledge Discovery,
Doi: http://doi.org/10.1002/widm.1492
Staunton, C., Middleton, A., Milne, R., Ó Broin, P. and Calmasini, C., 2023. Governance, access, and harms: perspectives of the Irish public on the use of their genetic data for research
Doi: http://doi.org/10.12688/wellcomeopenres.19075.1
Milne, R., Aidid, U., Atutornu, J., Bircan, T., Boraschi, D., Costa, A., Henriques, S., Patch, C. and Middleton, A., 2023. What Difference Can Public Engagement in Genome Editing Make, and for Whom? Am J Bioeth, v. 23
Doi: http://doi.org/10.1080/15265161.2023.2207545
2022
Atutornu, J., Milne, R., Costa, A., Patch, C. and Middleton, A., 2022. Towards equitable and trustworthy genomics research. EBioMedicine, v. 76
Doi: http://doi.org/10.1016/j.ebiom.2022.103879
Brenman, NF. and Milne, R., 2022. “Ready for What?”: Timing and Speculation in Alzheimer’s Disease Drug Development Science Technology and Human Values, v. 47
Doi: http://doi.org/10.1177/01622439211007196
Bunnik, EM., Smedinga, M., Milne, R., Georges, J., Richard, E. and Schermer, MHN., 2022. Ethical Frameworks for Disclosure of Alzheimer Disease Biomarkers to Research Participants: Conflicting Norms and a Nuanced Policy. Ethics Hum Res, v. 44
Doi: http://doi.org/10.1002/eahr.500146
Costa, A. and Milne, R., 2022. Understanding 'passivity' in digital health through imaginaries and experiences of coronavirus disease 2019 contact tracing apps. Big Data Soc, v. 9
Doi: http://doi.org/10.1177/20539517221091138
Milne, R., Morley, KI., Almarri, MA., Atutornu, J., Baranova, EE., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Feijao, C., de Freitas, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, HC., Hussain Sheikh, Z., Malmgren, CI., Izhevskaya, VL., Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, E., Patch, C., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, HA., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, TH., Wang, N., Yoshizawa, G. and Middleton, A., 2022. Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries Genetics in Medicine, v. 24
Doi: http://doi.org/10.1016/j.gim.2022.01.002
Graham, M., Milne, R., Fitzsimmons, P. and Sheehan, M., 2022. Trust and the Goldacre Review: why trusted research environments are not about trust. J Med Ethics,
Doi: http://doi.org/10.1136/jme-2022-108435
Saunders, S., Ritchie, CW., Russ, TC., Muniz-Terrera, G. and Milne, R., 2022. Assessing and disclosing test results for 'mild cognitive impairment': the perspective of old age psychiatrists in Scotland. BMC Geriatr, v. 22
Doi: http://doi.org/10.1186/s12877-021-02693-x
2021 (Accepted for publication)
Dixon-Woods, M., Milne, R. and Sorbie, A., 2021 (Accepted for publication). What can data trusts for health research learn from participatory governance in biobanks? Journal of Medical Ethics,
Dixon-Woods, M., Milne, R. and Sorbie, A., 2021 (Accepted for publication). What can data trusts for health research learn from participatory governance in biobanks? Journal of Medical Ethics,
2021
Brenman, NF., Milne, R. and Brayne, C., 2021. Trial readiness amongst EPAD longitudinal cohort study participants: Insights from the SPEAR study Alzheimer's & Dementia, v. 17
Doi: 10.1002/alz.053622
Milne, R., Altomare, D., Ribaldi, F., Molinuevo, JL., Frisoni, GB., Brayne, C. and European Task Force for Brain Health Services, , 2021. Societal and equity challenges for Brain Health Services. A user manual for Brain Health Services-part 6 of 6. Alzheimers Res Ther, v. 13
Doi: http://doi.org/10.1186/s13195-021-00885-6
Romano, V., Milne, R. and Mascalzoni, D., 2021. Italian public's views on sharing genetic information and medical information: findings from the 'Your DNA, Your Say' study. Wellcome Open Res, v. 6
Doi: http://doi.org/10.12688/wellcomeopenres.16909.1
Solomon, A., Stephen, R., Altomare, D., Carrera, E., Frisoni, GB., Kulmala, J., Molinuevo, JL., Nilsson, P., Ngandu, T., Ribaldi, F., Vellas, B., Scheltens, P., Kivipelto, M. and European Task Force for Brain Health Services, , 2021. Multidomain interventions: state-of-the-art and future directions for protocols to implement precision dementia risk reduction. A user manual for Brain Health Services-part 4 of 6. Alzheimers Res Ther, v. 13
Doi: http://doi.org/10.1186/s13195-021-00875-8
Murtagh, MJ., Machirori, M., Gaff, CL., Blell, MT., de Vries, J., Doerr, M., Dove, ES., Duncanson, A., Hastings Ward, J., Hendricks-Sturrup, R., Ho, CWL., Johns, A., Joly, Y., Kato, K., Katsui, K., Kumuthini, J., Maleady-Crowe, F., Middleton, A., Milne, R., Minion, JT., Matshaba, M., Mulrine, S., Patch, C., Ryan, R. and Viney, W., 2021. Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation. Wellcome open research, v. 6
Doi: http://doi.org/10.12688/wellcomeopenres.17233.1
Milne, R., Morley, KI., Almarri, MA., Anwer, S., Atutornu, J., Baranova, EE., Bevan, P., Cerezo, M., Cong, Y., Costa, A., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, HC., Hussain, SZ., Malmgren, CI., Izhevskaya, VL., Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Nicol, D., Niemiec, E., Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, HA., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, TH., Wang, N., West, AV., Yoshizawa, G. and Middleton, A., 2021. Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries. Genome Med, v. 13
Doi: http://doi.org/10.1186/s13073-021-00903-0
Rehm, HL., Page, AJH., Smith, L., Adams, JB., Alterovitz, G., Babb, LJ., Barkley, MP., Baudis, M., Beauvais, MJS., Beck, T., Beckmann, JS., Beltran, S., Bernick, D., Bernier, A., Bonfield, JK., Boughtwood, TF., Bourque, G., Bowers, SR., Brookes, AJ., Brudno, M., Brush, MH., Bujold, D., Burdett, T., Buske, OJ., Cabili, MN., Cameron, DL., Carroll, RJ., Casas-Silva, E., Chakravarty, D., Chaudhari, BP., Chen, SH., Cherry, JM., Chung, J., Cline, M., Clissold, HL., Cook-Deegan, RM., Courtot, M., Cunningham, F., Cupak, M., Davies, RM., Denisko, D., Doerr, MJ., Dolman, LI., Dove, ES., Dursi, LJ., Dyke, SOM., Eddy, JA., Eilbeck, K., Ellrott, KP., Fairley, S., Fakhro, KA., Firth, HV., Fitzsimons, MS., Fiume, M., Flicek, P., Fore, IM., Freeberg, MA., Freimuth, RR., Fromont, LA., Fuerth, J., Gaff, CL., Gan, W., Ghanaim, EM., Glazer, D., Green, RC., Griffith, M., Griffith, OL., Grossman, RL., Groza, T., Auvil, JMG., Guigó, R., Gupta, D., Haendel, MA., Hamosh, A., Hansen, DP., Hart, RK., Hartley, DM., Haussler, D., Hendricks-Sturrup, RM., Ho, CWL., Hobb, AE., Hoffman, MM., Hofmann, OM., Holub, P., Hsu, JS., Hubaux, J-P., Hunt, SE., Husami, A., Jacobsen, JO., Jamuar, SS., Janes, EL., Jeanson, F., Jené, A., Johns, AL., Joly, Y., Jones, SJM., Kanitz, A., Kato, K., Keane, TM., Kekesi-Lafrance, K., Kelleher, J., Kerry, G., Khor, S-S., Knoppers, BM., Konopko, MA., Kosaki, K., Kuba, M., Lawson, J., Leinonen, R., Li, S., Lin, MF., Linden, M., Liu, X., Udara Liyanage, I., Lopez, J., Lucassen, AM., Lukowski, M., Mann, AL., Marshall, J., Mattioni, M., Metke-Jimenez, A., Middleton, A., Milne, RJ., Molnár-Gábor, F., Mulder, N., Munoz-Torres, MC., Nag, R., Nakagawa, H., Nasir, J., Navarro, A., Nelson, TH., Niewielska, A., Nisselle, A., Niu, J., Nyrönen, TH., O'Connor, BD., Oesterle, S., Ogishima, S., Wang, VO., Paglione, LAD., Palumbo, E., Parkinson, HE., Philippakis, AA., Pizarro, AD., Prlic, A., Rambla, J., Rendon, A., Rider, RA., Robinson, PN., Rodarmer, KW., Rodriguez, LL., Rubin, AF., Rueda, M., Rushton, GA., Ryan, RS., Saunders, GI., Schuilenburg, H., Schwede, T., Scollen, S., Senf, A., Sheffield, NC., Skantharajah, N., Smith, AV., Sofia, HJ., Spalding, D., Spurdle, AB., Stark, Z., Stein, LD., Suematsu, M., Tan, P., Tedds, JA., Thomson, AA., Thorogood, A., Tickle, TL., Tokunaga, K., Törnroos, J., Torrents, D., Upchurch, S., Valencia, A., Guimera, RV., Vamathevan, J., Varma, S., Vears, DF., Viner, C., Voisin, C., Wagner, AH., Wallace, SE., Walsh, BP., Williams, MS., Winkler, EC., Wold, BJ., Wood, GM., Woolley, JP., Yamasaki, C., Yates, AD., Yung, CK., Zass, LJ., Zaytseva, K., Zhang, J., Goodhand, P., North, K. and Birney, E., 2021. GA4GH: International policies and standards for data sharing across genomic research and healthcare. Cell Genom, v. 1
Doi: http://doi.org/10.1016/j.xgen.2021.100029
Murtagh, MJ., Machirori, M., Gaff, CL., Blell, MT., de Vries, J., Doerr, M., Dove, ES., Duncanson, A., Hastings Ward, J., Hendricks-Sturrup, R., Ho, CWL., Johns, A., Joly, Y., Kato, K., Katsui, K., Kumuthini, J., Maleady-Crowe, F., Middleton, A., Milne, R., Minion, JT., Matshaba, M., Mulrine, S., Patch, C., Ryan, R. and Viney, W., 2021. Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation. Wellcome Open Res, v. 6
Doi: http://doi.org/10.12688/wellcomeopenres.17233.1
2020
Middleton, A., Milne, R., Howard, H., Niemiec, E., Robarts, L., Critchley, C., Nicol, D., Prainsack, B., Atutornu, J., Vears, DF., Smith, J., Steed, C., Bevan, P., Scott, ER., Bobe, J., Goodhand, P., Kleiderman, E., Thorogood, A., Morley, KI. and Participant Values Work Stream of the Global Alliance for Genomics and Health, , 2020. Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data. Eur J Hum Genet, v. 28
Doi: http://doi.org/10.1038/s41431-019-0550-y
Gregory, S., Bunnik, EM., Callado, AB., Carrie, I., De Boer, C., Duffus, J., Fauria, K., Forster, S., Gove, D., Knezevic, I., Laquidain, A., Pennetier, D., Saunders, S., Sparks, S., Rice, J., Ritchie, CW. and Milne, R., 2020. Involving research participants in a pan-European research initiative: the EPAD participant panel experience. Res Involv Engagem, v. 6
Doi: http://doi.org/10.1186/s40900-020-00236-z
Anna, M., Christine, P., Jonathan, R., Richard, M., Alessia, C., Lauren, R. and Jerome, A., 2020. Professional duties are now considered legal duties of care within genomic medicine. Eur J Hum Genet, v. 28
Doi: http://doi.org/10.1038/s41431-020-0663-3
Middleton, A., Milne, R., Almarri, MA., Anwer, S., Atutornu, J., Baranova, EE., Bevan, P., Cerezo, M., Cong, Y., Critchley, C., Fernow, J., Goodhand, P., Hasan, Q., Hibino, A., Houeland, G., Howard, HC., Hussain, SZ., Malmgren, CI., Izhevskaya, VL., Jędrzejak, A., Jinhong, C., Kimura, M., Kleiderman, E., Leach, B., Liu, K., Mascalzoni, D., Mendes, Á., Minari, J., Wang, N., Nicol, D., Niemiec, E., Patch, C., Pollard, J., Prainsack, B., Rivière, M., Robarts, L., Roberts, J., Romano, V., Sheerah, HA., Smith, J., Soulier, A., Steed, C., Stefànsdóttir, V., Tandre, C., Thorogood, A., Voigt, TH., West, AV., Yoshizawa, G. and Morley, KI., 2020. Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data? Am J Hum Genet, v. 107
Doi: http://doi.org/10.1016/j.ajhg.2020.08.023
2019 (Accepted for publication)
2019
Bartlett, R., Milne, R. and Croucher, R., 2019. Strategies to improve recruitment of people with dementia to research studies. Dementia (London), v. 18
Doi: http://doi.org/10.1177/1471301217748503
Milne, R., Morley, KI., Howard, H., Niemiec, E., Nicol, D., Critchley, C., Prainsack, B., Vears, D., Smith, J., Steed, C., Bevan, P., Atutornu, J., Farley, L., Goodhand, P., Thorogood, A., Kleiderman, E., Middleton, A. and Participant Values Work Stream of the Global Alliance for Genomics and Health, , 2019. Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia. Hum Genet, v. 138
Doi: http://doi.org/10.1007/s00439-019-02062-0
Middleton, A., Milne, R., Robarts, L., Roberts, J. and Patch, C., 2019. Should doctors have a legal duty to warn relatives of their genetic risks? Lancet, v. 394
Doi: http://doi.org/10.1016/S0140-6736(19)32941-1
2018 (Accepted for publication)
Milne, RJ., Diaz, A., Badger, S., Bunnik, E., Fauria, K. and Wells, K., 2018 (Accepted for publication). At, with and beyond risk: expectations of living with the possibility of future dementia Sociology of Health and Illness,
2018
Stites, SD., Milne, R. and Karlawish, J., 2018. Advances in Alzheimer's imaging are changing the experience of Alzheimer's disease. Alzheimers Dement (Amst), v. 10
Doi: http://doi.org/10.1016/j.dadm.2018.02.006
Bunnik, EM., Richard, E., Milne, R. and Schermer, MHN., 2018. On the personal utility of Alzheimer's disease-related biomarker testing in the research context. J Med Ethics, v. 44
Doi: http://doi.org/10.1136/medethics-2018-104772
Gregory, S., Wells, K., Forysth, K., Latto, C., Szyra, H., Saunders, S., Ritchie, CW. and Milne, R., 2018. Research participants as collaborators: Background, experience and policies from the PREVENT Dementia and EPAD programmes. Dementia (London), v. 17
Doi: http://doi.org/10.1177/1471301218789307
Middleton, A., Milne, R., Thorogood, A., Kleiderman, E., Niemiec, E., Prainsack, B., Farley, L., Bevan, P., Steed, C., Smith, J., Vears, D., Atutornu, J., Howard, HC. and Morley, KI., 2018. Attitudes of publics who are unwilling to donate DNA data for research. European Journal of Medical Genetics,
Doi: http://doi.org/10.1016/j.ejmg.2018.11.014
2017 (Accepted for publication)
Milne, RJ., 2017 (Accepted for publication). From people with dementia to people with data: participation and value in Alzheimer’s disease research BioSocieties,
Brayne, CEG. and Milne, R., 2017 (Accepted for publication). Perspectives on communicating biomarker-based assessments of Alzheimer’s disease to cognitively healthy individuals Journal of Alzheimer's Disease,
2017
Milne, R., Diaz, A., Bunnik, E., Badger, S., Fauria, K., Molinuevo, JL., Wells, K., Ritchie, CW. and Brayne, C., 2017. [P4–377]: EXPECTATIONS RELATED TO THE IMPLICATIONS OF LEARNING ALZHEIMER's DISEASE RISK AMONG COGNITIVELY HEALTHY RESEARCH PARTICIPANTS Alzheimer's & Dementia, v. 13
Doi: 10.1016/j.jalz.2017.06.2248
Atkinson, S., Milne, R., Badger, S. and Brayne, C., 2017. [P4–379]: RESEARCH PARTICIPANT PERSPECTIVES ON RECRUITMENT FROM EXISTING COHORTS IN DEMENTIAS PLATFORM U.K. Alzheimer's & Dementia, v. 13
Doi: 10.1016/j.jalz.2017.06.2250
2016 (Accepted for publication)
Milne, R., Bunnik, E., Tromp, K., Bemelmans, S., Badger, S., Gove, D., Maman, M., Schermer, M., Truyen, L., Brayne, C. and Richard, E., 2016 (Accepted for publication). Ethical Issues in the Development of Readiness Cohorts in Alzheimer's Disease Research. Journal of Prevention of Alzheimer's Disease, v. 4
Doi: http://doi.org/10.14283/jpad.2017.5
2016
Bemelmans, SASA., Tromp, K., Bunnik, EM., Milne, RJ., Badger, S., Brayne, C., Schermer, MH. and Richard, E., 2016. Psychological, behavioral and social effects of disclosing Alzheimer's disease biomarkers to research participants: a systematic review Alzheimer's research & therapy, v. 8
Bemelmans, SASA., Tromp, K., Bunnik, EM., Milne, RJ., Badger, S., Brayne, C., Schermer, MH. and Richard, E., 2016. Psychological, behavioral and social effects of disclosing Alzheimer's disease biomarkers to research participants: a systematic review Alzheimer's research & therapy, v. 8
2015
2012
2011
2010
2008
Milne, R., 2008. Public attitudes toward molecular farming in the UK AgBioForum, v. 11
